What do mean when we say "ethnic background or heritage?"

The answer to this question and its definition is not always simple. But in basic terms, your ethnic or indigenous background refers to the country that your ancestors came from. It doesn't necessarily mean that you only have an ethnic background if you were born in another country. Your ethnic background can also be from where your ancestors came from (ie- parents, grand-parents, great-grandparents and so on). So for example your parents could be born in Italy to Italian parents but you were born in Australia, your ethnic background would be considered to be Italian.

Some people have a mixed heritage, for example you might be born in Australia but your father was born in Ireland to Irish parents and your mother was born in Italy to Italian parents, this means your ethnic background is half Irish and half Italian. 

Essentially, the make-up of your blood and your "tissue type"/unique code is given its unique profile from your bloodline and ancestors. Your tissue type is what's used to compare to see if it matches with a patient's tissue type, that's why a patient is more likely to find their lifesaving stem cell match with someone who shares a similar ethnic background or heritage to them.

Here are some examples of countries that fall within the different categories which form the Australian Bone Marrow Donor Registry (ABMDR):

North Caucasian also referred to at times as North West European includes countries and areas such as the UK, Ireland, Germany and more.

Pacific Islander includes countries like Samoa, Fiji, Tonga and more

Southern European includes countries like Italy, Greece, Spain, other Mediterranean countries, Eastern European countries like Croatia and more

African includes countries like Algeria, Zimbabwe, Sudan and more.

Asian includes countries like China, India, Vietnam and more.

Middle Eastern includes countries like Lebanon, Egypt, Iraq and more. 

Eastern Europe includes countries like Croatia, Hungary, Bosnia and Herzegovina and more.

 

Why do we focus our activities on advocating for patients from minority backgrounds?

Patients from ethnic backgrounds are grossly under-represented on the ABMDR which means they are less likely to find their lifesaving stem cell match, this can be their only chance to find a cure. If we were to double the number of people currently on the ABMDR, it would only increase the chances of patients finding a match by 5%. This is because over 80% of people on the ABMDR are from North West European backgrounds. The key to increasing the chance of patients finding their match is to focus on recruiting people from the different ethnic and indigenous communities and hence the reasoning behind why we focus our activities on advocating for patients from minority backgrounds.